Another Twist

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After a confirmation of Lyme from a doctor in Exeter a few months ago I have followed his treatment program and I really had hope this would resolve the pain. 2+ months later, things are no better and sometimes worse depending on the day. At the behest of a family member, I went to see an infectious disease specialist in Boston at Brigham & Womens.

Dr Yawetz is Lyme literate and and very experienced in all types of infectious diseases. We met on a Wednesday and she ordered up more blood work (Yeah!..not) During her exam of my right knee she commented that she did not feel that the Lyme infection was the culprit. ARGHHHH, really?

She carefully moved my leg around and explained that while orthopedics is not her field, the pain is coming from something structural within the knee. She referred me to an orthopedic knee specialist, Dr Tom Minas ( ).

I was able to get into to see his PA today and after going over the X-Rays it is clear that the pain is being driven by a lack of joint space on the inside of both knees. Because of my being bow legged, the weight bearing line runs down this inside of the knee and not thru the center as it should. An MRI will need to be done in order to determine next steps. There are several options depending upon the MRI results. Unfortunately they all involve another surgery.

The nagging question for me is why did my orthopedic surgeon here in NH not see this as an issue. After doing a meniscus repair on that knee in June 2016 I went back multiple times to try and sort out what was causing the pain. He tried cortisone injections, removed fluid on multiple occasions and also tried a joint cushion injection using euflexxa.  He finally threw his hands up and said it was out of his scope. He had run out of options. There was nothing he could see that would cause the pain. Go see a rheumatologist was his suggestion. #beyondfrustated

3 thoughts on “Another Twist

    Diane Adinolfo said:
    August 4, 2017 at 8:42 am

    Sounds like knee replacements are in your future. If that’s the case, consider going to Concord Orthopedics near Concord Hospital. That’s where Ronnie went and never had any regrets. I can’t remember the name of the doctor, but if it comes to that, I’ll get his name. The doctor that did Ronnie’s knee replacements specializes in younger people and he uses a computerized measuring system for the alignment. Maybe you should go see him soon.



      latwallis responded:
      August 4, 2017 at 8:48 am

      Thanks Diane. I am seeing a top ortho in Boston but I am going to check out a few before I make any decisions.


    Pam said:
    August 5, 2017 at 12:20 pm

    I have been thinking a lot about your struggle with Lyme. It seems so obscure and there are so many unknowns. I hope that there will continue to be research on the disease to help you in the future. I know that’s not much comfort. I do know that if you eat right like I think you are, and take all your supplements with your shake daily it will strengthen your body and help you fight what’s going on. You are fighting a war on several fronts. Your body was weakened by surgery and now the Lyme. I have heard many people talk about the benefits of taking gluco gel and the beyond Osteo FX. The more calcium and glucosamine you can get into your system, the more the body can start rebuilding. The body is an amazing thing. Keep up the fight Bro! Will send strong vibes. Love you, Sis


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