After over a year of trying to sort out what has been causing my brain fog and joint pain, I finally have an answer and the answer is Lyme. I have suspected this since a positive then negative test for Lyme back in November. I finally found, after 5 previous doctors, a Lyme literate doctor in Exeter, NH. He ordered blood test that were never mentioned by my other doctors. The results came in Monday and I met with him on Friday.
He ordered a test called the Borrelia burgdorferi C6 Pep Abs ELISA. It came back with a strong positive of 3.28 compared to the norm of .90 or less. The standard Elisa test was also positive and the Western blot showed 2 markers, the same as in November. The other issue is a co infection of candida. Candida is naturally in the gut microbiome but when the immune system is suppressed as mine is now, there can be an overgrowth of Candida. Here is a link to a great article on that subject. http://www.tiredoflyme.com/candida.html
So where do I go from here now that I know for sure who the enemy is that I am fighting. To start, I am on a 6 week protocol of Oregano Liposomal capsules, Artemisinin Liposomal capsules and Ozone Sauna treatments twice a week. I have been on the Oregano Liposomal capsules for 30 days and I feel we are heading in the right direction. I am guessing that if you are reading this you have never heard of any of these treatment options. I was in the same position and had not heard of any of these as healing options for Lyme and actually never heard of them at all for anything.
My big AH….HA from this experience is that western medicine, while being very valuable in many ways, is light years behind the times and refuses to look beyond what they are taught. My rheumatologist, a wonderfully sharp young lady, admitted that there is so much to be learned and she was bound by CDC guidelines. She told me that based on my test results, I was fine! My response was, “Okay, then why did it take me 10 minutes to walk 100 yards from your office to my car on my last visit?” Her reply was that she knew that was what I was going to say and she had no answer.
Bottom line is this, be your own best advocate! Do not settle for answers from doctors that you know are not correct. Question everything and do your homework when it comes to your health issues. I am a huge fan of traditional medicine in some cases. The doctors at Brigham and Women’s and Dana Farber saved my life when I was diagnosed with Sarcoma. That being said when the answer is “take this pill and we will see if it helps” and it doesn’t …start looking deeper.
I am not out of the woods by any means but when the Fed Ex truck pulled up to my house today and I got up from my office chair and bounded down the stairs. I got to the bottom and realized, holy crap, I have not been able to that in a year! It had been one step at a time and sideways because it hurt too much to walk straight down the stairs. I will win this battle and I feel the tide has turned.