After the 30 days of antibiotics recommended by a local naturopathic doctor, who is a Lyme specialist, things did not change. I was told if the antibiotics did not help then he could not help me and I should see a rheumatologist. So much for being a specialist!
I did see a rheumatologist and after a visit where they drew blood and took fluid from my left knee, I was told there is nothing in the fluid or blood work that is a red flag. I am fine is what they said. When I asked if I am “fine” then why it was so difficult and painful to walk from the parking lot to her office she looked at me and said, “I don’t have an answer”.
I have taken over my own treatment and continually research Lyme or other options that could be the source of the pain. I have added some herbal supplements and even started taking CBD oil twice a day. I have also started tracking food and keeping a journal on how I feel each day. It is helping and my bad days are close to what a good day felt like last month. Progress!
My goal is to get a correlation between more painful times and what I am eating/drinking. So far it seems that sadly, beer is a trigger. Pizza is also a trigger. I don’t have it very often so that won’t be as big a miss as the beer. Had dinner with neighbors last night and they served pizza and I had a couple of beers. Paying for it today with pain in my feet and knees as well as joint pain in my thumbs in both hands. I have a hard time up or down stairs and walking more than 50 feet is a big ask. This is the 3rd time over the past couple of months that I have had one or the other and each time has been followed by a spike in pain levels.
So the fight and research goes on. I am getting a test done at the only lab in the US that specializes in insect borne illnesses, Igenix Labs. http://www.igenex.com/ By using there test protocol I should be able to rule Lyme out or know for sure what I am dealing with so I can get it fixed.