Path is Defined

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So…here is the path. We met with Dr Beth Baldini who is the Director of Sarcoma Radiation Oncology at Brigham & Women’s Hospital & Dana Farber. She laid out all of our options and shared some info from the treatment side we were unaware of before today. One thing is the tumor is not as close to the femur as the MRI would lead the untrained eye (ME) to believe, good thing! It is also on the lateral (outside) of my thigh which is MUCH better than on the inside, good thing #2. It is also deep in the tissue, which I thought was a bad thing, and again I was wrong. Tumors closer to the surface are much more prone to infection and other healing issues than a deep one like mine. Good thing #3.

There are only two paths to follow with a Sarcoma, even a garden variety like mine (if you can call something that has only 11,000 cases diagnosed worldwide) garden variety. What I have is the most common type of Sarcoma. Both paths include surgery and radiation. There are NO other options and if left untreated, it will grow and spread and we all know how that ends.
After a ton a of questions which Dr, Baldini answered in such an expert manner we are going with the radiation preoperative rather than post op. Lots of reasons but mainly there is less radiation needed and for a shorter time period as well. Based on the location of the Sarcoma and the fact that it is localized the chance of it coming back are less than 10% using her methods. That is the most important goal by far!
She will map out exactly where the treatments will be targeted using hi tech software and CT scans along with MRI’s. She works with a physicist to target exactly, the proper area. It takes her a week of planning to get things perfect after my planning session with her next week so I won’t start radiation until May 11th. The radiation will last 5 weeks and it is 5 days a week at Brigham & Women’s. No side effects are expected due to the targeting and low dose other than maybe a little redness on my thigh. The actual radiation per treatment is less than 2 minutes. There will be a small area around the tumor (margin) that will also be targeted so that when the tumor is scooped out, no cancer will be left behind.
All in all, we left there knowing that we are in the best possible place to be treated for this rare cancer. Everytime we interact with the Doctors and nurses they could not be more knowledgeable and professional in their approach. Dr Baldini does nothing but working with Sarcoma. She had 5 patients she saw today with Sarcoma. Most hospitals might not see 5 in a year or 2.
Feeling like we are on the right path….Long way to go but we are looking good!

4 thoughts on “Path is Defined

    Emmanuelle West said:
    April 27, 2015 at 10:36 pm

    Hey Tony, so sorry that it is cancerous after all!! But there are a lot of positives so thank God for that! So glad you are in such good hands! Hang in there, praying for you and I bet this will be all behind you soon. Kick it the curb!!!!

    Liked by 1 person

    Luanne Tanas said:
    April 28, 2015 at 10:44 am

    Definitely sounds like a good plan Tony. Feeling confident with your care team is the best. You know they will get you back to 100% !! Bumpy road for awhile but YOU GOT THIS!

    Like

    Ty Rossdeutcher said:
    April 28, 2015 at 4:28 pm

    Sounds like you’re at the right place!! Glad to know you’re in good hands. Keep the positivity going – this cancer doesn’t stand a chance!

    Liked by 1 person

    Sharon Schafer said:
    April 29, 2015 at 2:15 pm

    Hey Tony,

    I was shocked to hear your news, but so glad you have a positive attitude! That will carry you further than you know. I am not what most would call a religious person, but I do believe in miracles. I’ve seen them happen and I can tell you one thing I firmly believe made a difference with my son…..don’t under estimate the power of prayer. My family started a prayer chain and at times, there was nothing else we could contribute the success and progress to. I didn’t really participate in the prayer chains, but I would repeatedly hear comments from family and friends how they were passing the message along. The doctors would simply say, whatever it takes, we’ll accept all options and help we can get! His recovery really was miraculous and the love and support from family and friends, the knowledge of the best doctors around, and a strong positive attitude got us through. And yes, I won’t discount the prayer chain my family started.
    Thinking of you and your family……now go kick this thing!

    Liked by 1 person

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